LAM Foundation WHAT'S NEW

The LAM Foundation International Research Conference (LAMposium 2006) is scheduled for March 31 - April 2, 2006 at the Hilton Cincinnati Netherland Plaza Hotel. Mark your calendars now!
The LAM Foundation conducts the first-ever Treatment Trial for LAM patients!
Thanks to the dedicated labors of our Scientific Board, the encouraging results of our initial pilot study, and the long-awaited approval from the National Institutes of Health, the global MILES Treatment Trial is about to begin! Click here for a summary of the trial.

Initial pilot study: A treatment trial for patients with LAM and tuberous sclerosis was conducted at the TS Clinic at the University of Cincinnati in Cincinnati, Ohio. The study was to determine if a drug called rapamycin has an effect on angiomyolipomas (benign kidney tumors), commonly found in TS and LAM patients. The first patient was enrolled early in May 2003. The treatment trial was funded by The LAM Foundation, The Tuberous Sclerosis Alliance, and the National Cancer Institute. Click here for an interview with Dr. McCormack regarding the Cincinnati rapamycin trial. Following that interview is an article about the trial that will be expanded to a worldwide treatment trial.
The LAM Foundation's April 2005, Cincinnati Breath of Hope Gala revenue was $82,000.
Fund-A-Cure $49,000
Raffle $17,000
Silent Auction $15,000
Games $900
New LAM Handbook!
The LAM Foundation is proud to announce the first-ever LAM Handbook for patients and their families! The 148-page Handbook includes chapters on the basics of LAM, oxygen therapy, understanding pulmonary function tests, management of lung collapses and kidney tumors, lung transplantation, and the rapamycin treatment trial. Also included is information about the LAM protocol at the National Institutes of Health, eligibility requirements for Social Security benefits, and helpful discussion on coping with your illness. More information and how to order.
Medical Brochure: Key Facts About Lymphangioleiomyomatosis
Supplemental Oxygen Issue.
On July 14, 2004, the Department of Transportation (DOT) Federal Aviation Administration (FAA) released a draft proposed rule on the Use of Certain Portable Oxygen Concentrator Devices Onboard Aircraft. This draft rule is a significant step toward improving travel for patients who require supplemental oxygen. More information...
Fundraising Events: Who, What, Where and When.
Check out The LAM Community's fundraising ventures.
Star Quality
LAM Celebrities Lift Up Our Mission.
View the LAM Brochure. To obtain copies call 513-777-6889 or email Sally Lamb at The LAM Foundation.
Journeys: The latest edition of the Foundation's newsletter.
The LAM Foundation is announcing its Call for Proposals. The Foundation is offering additional post doctoral fellowships for the study of the cellular and molecular basis of the abnormal smooth muscle proliferation that occurs in the disease, Lymphangioleiomyomatosis..
View and download LAM scientific slides.
The House of Representatives urges the NHLBI to support LAM! More...
Information for Funding Research In Someone's Honor.
Gene expression profiling of LAM lungs.
L inks to National Respiratory Patient Organizations.

Past News of Interest
First Major Breakthrough! LAM Foundation investigator, Dr. Elizabeth Henske, discovered that tuberous sclerosis gene mutations are a cause of LAM. The Announcement!
Director Sue Byrnes and Scientific Director Frank McCormack were invited to speak at the United Nations in New York on December 16, 2002, to promote research on women's health. Their presentations at this important seminar reported the remarkable success of a grassroots effort and the astounding progress in the investigation of Lymphangioleiomyomatosis, or LAM. The seminar on women's health was presented by the Royal Academy of Scientific International Trust (RASIT). The presentation by Sue Byrnes is featured on the website as well as a pdf version of the press release. Also featured is the PowerPoint presentation by Dr. Frank McCormack.
LAM Foundation Scientific Advisory Board Members receive awards.
Director Sue Byrnes honored with appointment to serve on the National Heart, Lung and Blood Advisory Council.


What's New!
The LAM Foundation International Research Conference (LAMposium 2006) is scheduled for March 31 - April 2, 2006 at the Hilton Cincinnati Netherland Plaza Hotel. Mark your calendars now! The LAM Foundation conducts the first-ever Treatment Trial for LAM patients! Thanks to the dedicated labors of our Scientific Board, the encouraging results of our initial pilot study, and the long-awaited approval from the National Institutes of Health, the global MILES Treatment Trial is about to begin! Click here for a summary of the trial. Initial pilot study: A treatment trial for patients with LAM and tuberous sclerosis was conducted at the TS Clinic at the University of Cincinnati in Cincinnati, Ohio. The study was to determine if a drug called rapamycin has an effect on angiomyolipomas (benign kidney tumors), commonly found in TS and LAM patients. The first patient was enrolled early in May 2003. The treatment trial was funded by The LAM Foundation, The Tuberous Sclerosis Alliance, and the National Cancer Institute. Click here for an interview with Dr. McCormack regarding the Cincinnati rapamycin trial. Following that interview is an article about the trial that will be expanded to a worldwide treatment trial. The LAM Foundation's April 2005, Cincinnati Breath of Hope Gala revenue was $82,000. Fund-A-Cure $49,000 Raffle $17,000 Silent Auction $15,000 Games $900 New LAM Handbook! The LAM Foundation is proud to announce the first-ever LAM Handbook for patients and their families! The 148-page Handbook includes chapters on the basics of LAM, oxygen therapy, understanding pulmonary function tests, management of lung collapses and kidney tumors, lung transplantation, and the rapamycin treatment trial. Also included is information about the LAM protocol at the National Institutes of Health, eligibility requirements for Social Security benefits, and helpful discussion on coping with your illness. More information and how to order. Medical Brochure: Key Facts About Lymphangioleiomyomatosis Supplemental Oxygen Issue. On July 14, 2004, the Department of Transportation (DOT) Federal Aviation Administration (FAA) released a draft proposed rule on the Use of Certain Portable Oxygen Concentrator Devices Onboard Aircraft. This draft rule is a significant step toward improving travel for patients who require supplemental oxygen. More information... Fundraising Events: Who, What, Where and When. Check out The LAM Community's fundraising ventures. Star Quality LAM Celebrities Lift Up Our Mission. View the LAM Brochure. To obtain copies call 513-777-6889 or email Sally Lamb at The LAM Foundation. Journeys: The latest edition of the Foundation's newsletter. The LAM Foundation is announcing its Call for Proposals. The Foundation is offering additional post doctoral fellowships for the study of the cellular and molecular basis of the abnormal smooth muscle proliferation that occurs in the disease, Lymphangioleiomyomatosis.. View and download LAM scientific slides. The House of Representatives urges the NHLBI to support LAM! More... Information for Funding Research In Someone's Honor. Gene expression profiling of LAM lungs. L inks to National Respiratory Patient Organizations. Past News of Interest First Major Breakthrough! LAM Foundation investigator, Dr. Elizabeth Henske, discovered that tuberous sclerosis gene mutations are a cause of LAM. The Announcement! Director Sue Byrnes and Scientific Director Frank McCormack were invited to speak at the United Nations in New York on December 16, 2002, to promote research on women's health. Their presentations at this important seminar reported the remarkable success of a grassroots effort and the astounding progress in the investigation of Lymphangioleiomyomatosis, or LAM. The seminar on women's health was presented by the Royal Academy of Scientific International Trust (RASIT). The presentation by Sue Byrnes is featured on the website as well as a pdf version of the press release. Also featured is the PowerPoint presentation by Dr. Frank McCormack. LAM Foundation Scientific Advisory Board Members receive awards. Director Sue Byrnes honored with appointment to serve on the National Heart, Lung and Blood Advisory Council.