LUNG TRANSPLANTATION
The Gift of Life
The LAM Foundation would, once again, like to encourage you to discuss organ donation with your family. Remember to (1) sign your donor card and (2) notify your family of your wishes to become a donor, so that precious gifts of life don't go unused.
If you would like to know more about organ donation, you may call your local Organ Procurement Office or visit one of many websites. The Second Wind Organization focuses on the needs of lung transplant recipients. Another excellent resource can be found at www.organdonor.gov. We hope that you will join with us in this tremendously important mission.
Tissue Donations Needed
The most valuable resource for our LAM researchers is human tissue donated at the time of surgery or lung transplantation. If you are a LAM patient planning to have any type of surgery and are interested in donating tissue, please contact The LAM Foundation at 513-777-6889 or email The LAM Foundation
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ORGANIZATIONS
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| United Network for Organ Sharing (UNOS)
1100 Boulders Parkway, Suite 500
Richmond, VA 23225-8770
Click Here |
Second Wind National Lung Transplant Patients Assoc.
16393 E. Duran Blvd.
Loxahatchee, FL 33470
(407) 793-7480
http://www.2ndwind.org |
American Lung Association (ALA)
1740 Broadway
New York, NY 10019-4374
(212) 315-8700 (Voice)
(800) 586-4872 (Voice)
(800) 528-2971 (Living Bank) |
| American Thoracic Society (ATS)
1740 Broadway
New York, NY 10019-4374
(212) 315-8804 |
Transplant
Ohio State University |
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LINKS TO OTHER LUNG TRANSPLANT SITES
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Lung Transplantation Program Columbia University
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| The International Society For Heart and Lung Transplantation This site does not have patient resources or information for non-medical professionals |
| The Brigham and Women's Hospital's Lung Transplantation Program |
| Daily Lung Transplant 1 Daily Lung Transplant 2 |
John Hopkins Comprehensive Transplant Center
(not active) |
| University of Utah Transplant Center |
| Cystic L Handbook |
| The University of Maryland Medical Center's Transplantation Program |
| Chest Surgeons |
| Pulmonary Retransplant Registry |
| The National Transplant Assistance Fund |
| National Foundation for Transplants |
OTHER SOURCES OF INFORMATION
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| National Organization for Rare Disorders, Inc. (NORD)
100 Rt. 37, P.O. Box 8923
New Fairfield, CT 06812-1783
(203) 746-6518
(800)999-6673 |
Office of Research on Womens Health
Building 1, Room 202
Bethesda, MD 20892-0161
Phone: (301) 402-1770
Fax: (301) 402-1978 |
Office of Rare Disease Research
Federal Building, Room 618
7550 Wisconsin Avenue
Bethesda, MD 20892
Phone: (301) 402-4336
Fax: (301) 402-0420 |
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