HOW COMMON IS LAM?
LAM usually affects only women, usually between the onset of puberty and menopause. Several cases have been reported in older women, but it is not clear when the disease developed in these patients. The precise number of people who have LAM is not known. It has been estimated that there may be up to one thousand women with the disease in the United States. It also has been suggested that LAM has become more common during the past 5 to 10 years, although it may be that doctors are doing a better job of diagnosing it.
LAM DIRECTORY
The LAM Foundation publishes a directory of women who have LAM throughout the United States and other countries as well. This directory includes women who have given written consent to publish their names, addresses and telephone numbers and is made available to all interested LAM patients and physicians. Women find it satisfying to communicate with other women who have LAM. Through this network, strong, close relationships have developed between LAM patients